Leveraging stories of cardiac amyloidosis patients of African ancestry or descent to support patient-derived data elements for efficient diagnosis and treatment
oleh: Rachele M. Hendricks-Sturrup, Rachele M. Hendricks-Sturrup, Rachele M. Hendricks-Sturrup, Lauren M. Edgar, Christine Y. Lu, Christine Y. Lu, Christine Y. Lu
| Format: | Article |
|---|---|
| Diterbitkan: | Frontiers Media S.A. 2023-11-01 |
Deskripsi
Subjek
amyloidosis; African; patient-reported outcomes; electronic health record; diagnosis; rare disease