Feasibility and ethics of using data from the Scottish newborn blood spot archive for research

oleh: Sarah Cunningham-Burley, Daniel L. McCartney, Archie Campbell, Robin Flaig, Clare E. L. Orange, Carol Porteous, Mhairi Aitken, Ciaran Mulholland, Sara Davidson, Selena M. McCafferty, Lee Murphy, Nicola Wrobel, Sarah McCafferty, Karen Wallace, David StClair, Shona Kerr, Caroline Hayward, Andrew M. McIntosh, Cathie Sudlow, Riccardo E. Marioni, Jill Pell, Zosia Miedzybrodzka, David J. Porteous

Format: Article
Diterbitkan: Nature Portfolio 2022-10-01

Deskripsi

Cunningham-Burley, McCartney, Campbell, Flaig, Orange et al. assess the ethics and potential benefit of secondary data use from newborn blood spot archives for research in a Citizen’s jury that agreed this was in the public interest. They also investigate and demonstrate the feasibility of using the archives for research purposes.