Find in Library
Search millions of books, articles, and more
Indexed Open Access Databases
Why a registry of Chronic Urticaria (CUR) is needed
oleh: R.M. Gómez, E. Jares, G.W. Canonica, I. Baiardini, G. Passalacqua, M. Sánchez Borges, A.P. Kaplan, Carlos E. Baena-Cagnani
| Format: | Article |
|---|---|
| Diterbitkan: | Elsevier 2017-01-01 |
Deskripsi
Chronic urticaria (CU) has a major effect on patients’ quality of life. While there have been progressive advances regarding its pathogenesis and treatment, much remains to be done.Registries of other chronic non-communicable diseases have shown many benefits, such as additional basic knowledge and management approaches to diabetes mellitus. Standards of care as well as diagnostic approaches can be elaborated and compared from different sites, using validated instruments. Registries in allergic diseases are also becoming well recognized, and the first registry on CU, accessible from SLaai’s webpage, includes parameters for identification, evaluation and management. In our vision, informatics strategies have the potential to improve care for chronic illnesses such as CU. The registry represents a valid instrument from which to obtain a sufficient sample size for epidemiological studies and/or clinical research planning, including feasibility and potential enrollment. It can also provide invaluable data for adapting guidelines to local populations, as well as diagnostic approaches and cost-effective interventions in the context of organizational efforts to improve patient care. Keywords: Chronic Urticaria, Registry, Tools, Approach, Management