Letter to the Editor Regarding “Validation of a Set of Instruments to Assess Patient- and Caregiver-Oriented Measurements in Spinal Muscular Atrophy: Results of the SMA-TOOL Study”
oleh: Jessica Braid
| Format: | Article |
|---|---|
| Diterbitkan: | Adis, Springer Healthcare 2023-11-01 |
Deskripsi
Subjek
Disease burden; Outcome measures; Patients and caregivers; Quality of life; Spinal muscular atrophy; Symptom assessment