Psychiatric Aspects of Primary Immunodeficiency Diseases: The Parental Study

oleh: Hassan Abolhassani, Asghar Aghamohammadi, Sarvenaz Pourjabbar, Mohammad Salehi Sadaghiani, Sina Nikayin, Anahita Rabiee, Amir Imanzadeh, Javad Mahmmoodi Gharaei, Mohammad Arbabi, Nima Rezaei

Format: Article
Diterbitkan: Tehran University of Medical Sciences 2013-06-01

Deskripsi

Primary immunodeficiency diseases (PID) consist of a group of long-term illnesses which had permanent psychiatric effects on the patients and their parents. This study was designed to find out the most important origins and aspects of stressor in parents of PID patients.To assess the  impact of  psychiatric aspects in parents  of PID  patients, a valid and reliable questionnaire was compiled based on patients' complaints and consulting professionals in PID and psychology. Fathers of 26 PID patients (17 male and 9 female) were enrolled in this study. According to the result of this study, anxiety for long duration of disease of child (mean score= 4.42), anxiety for incurable diseases of child (mean score=4.23) and anxiety for side effects and complication of treatments on child (mean score=4.08) were the most important stressors of parents. The  comparison  between  specific PID  groups  showed  that  there  were  significant differences between total score of groups (XLA= 92.8±31.2, CVID=78.7±19.5 and other types of PID=  90.7±22.5, p-value =0.37). Survey for finding fundamental stressors and continuation of psychological counseling are necessary to achieve successful management of PID patients and their parents.