Quality of Life in Hidradenitis Suppurativa: validation of the HSQoL-24
oleh: Servando E. Marron, Manuel Gomez-Barrera, Lucía Tomas Aragones, Ana Goni-Navarro, Esther Vilarrasa, Rosa María Diaz-Diaz, Francisco Javier Garcia-Latasa de Aranibar, Ricardo Campos-Rodenas, Victoria Fuentelsaz del Barrio, Yolanda Gilaberte-Calzada, Tamara Gracia-Cazaña, Anna María Morales-Callaghan, Sandra Ros-Abarca, María Blanca Madrid-Alvarez, Lluís Puig
| Format: | Article |
|---|---|
| Diterbitkan: | Medical Journals Sweden 2021-08-01 |
Deskripsi
To date, there are no disease-specific instruments in Spanish to assess quality of life of patients with hidradenitis suppurativa. A multicentre study was previously carried out in Spain between 2016 and 2017 to develop the Hidradenitis Suppurativa Quality of Life-24 (HSQoL-24), a disease-specific questionnaire to assess quality of life in patients with hidradenitis suppurativa. The objectives of this study are to revalidate the HSQoL-24 in Spanish with a larger sample of patients, and to present the English version. In this multicentre study in Spain, patients with hidradenitis suppurativa completed the HSQoL-24, the Dermatology Life Quality Index and the Skindex-29. The Hurley staging system was used to assess the severity of the disease. Validation of the questionnaire was carried out in 130 patients, of whom 75 (57.7%) were women. This study demonstrates adequate values of reliability and validity of the HSQoL-24, confirming the previous test re-test validation and making this questionnaire one of wide clinical validity in terms of results perceived by patients.