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Key points Although there are many patient organisations in Europe, this is not the case in all countries across the globe.; Access to care is one of the main global issues highlighted by the European Lung Foundation International Patient Advisory Committee.; The European Respiratory Society/European Lung Foundation Healthy Lungs for Life campaign can be used locally or globally to raise awareness of the risk factors for lung disease.; Implementation science is a method that can be used to assess the feasibility of using research findings in routine healthcare in clinical settings in different parts of the world.; Educational aims To show how patient- and public-focussed initiatives and activities can be adapted and modified to be effective in local, national and international settings, and to provide specific examples of these from the European Lung Foundation.