Hasil Pencarian - Sarah Acaster

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  1. 1
    A survey exploring caregiver burden and health-related quality of life in hereditary transthyretin amyloidosis

    A survey exploring caregiver burden and health-related quality of life in hereditary transthyretin amyloidosis oleh Sarah Acaster, Siu Hing Lo, Sandra Nestler-Parr

    Diterbitkan 2023-01-01
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  2. 2
    Symptoms and impacts of aromatic l-amino acid decarboxylase (AADC) deficiency among individuals with different levels of motor function

    Symptoms and impacts of aromatic l-amino acid decarboxylase (AADC) deficiency among individuals with different levels of motor function oleh Kate Williams, Hanna Skrobanski, Katharina Buesch, Sarah Acaster

    Diterbitkan 2022-03-01
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  3. 3
    A qualitative study on the impact of caring for an ambulatory individual with nonsense mutation Duchenne muscular dystrophy

    A qualitative study on the impact of caring for an ambulatory individual with nonsense mutation Duchenne muscular dystrophy oleh Kate Williams, Ian Davidson, Mark Rance, Katharina Buesch, Sarah Acaster

    Diterbitkan 2021-08-01
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  4. 4
    Symptoms and impacts of ambulatory nonsense mutation Duchenne muscular dystrophy: a qualitative study and the development of a patient-centred conceptual model

    Symptoms and impacts of ambulatory nonsense mutation Duchenne muscular dystrophy: a qualitative study and the development of a patient-centred conceptual model oleh Kate Williams, Ian Davidson, Mark Rance, Axel Boehnke, Katharina Buesch, Sarah Acaster

    Diterbitkan 2021-08-01
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  5. 5
    Allergy to Peanuts imPacting Emotions And Life (APPEAL): the impact of peanut allergy on children, adolescents, adults and caregivers in France

    Allergy to Peanuts imPacting Emotions And Life (APPEAL): the impact of peanut allergy on children, adolescents, adults and caregivers in France oleh Pascale Couratier, Romain Montagne, Sarah Acaster, Katy Gallop, Ram Patel, Andrea Vereda, Guillaume Pouessel

    Diterbitkan 2020-10-01
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  6. 6
    Symptoms and impacts of familial chylomicronemia syndrome: a qualitative study of the patient experience

    Symptoms and impacts of familial chylomicronemia syndrome: a qualitative study of the patient experience oleh Kate Williams, Georgina Tickler, Pedro Valdivielso, Jordi Alonso, Montserrat Vera-Llonch, Laia Cubells, Sarah Acaster

    Diterbitkan 2023-10-01
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  7. 7
    Psychosocial and productivity impact of caring for a child with peanut allergy

    Psychosocial and productivity impact of caring for a child with peanut allergy oleh Sarah Acaster, Katy Gallop, Jane de Vries, Anne Marciniak, Robert Ryan, Andrea Vereda, Rebecca Knibb

    Diterbitkan 2020-09-01
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  8. 8
    Psychometric performance of the CFQ-R-8D compared to the EQ-5D-3L and SF-6D in people with cystic fibrosis

    Psychometric performance of the CFQ-R-8D compared to the EQ-5D-3L and SF-6D in people with cystic fibrosis oleh Clara Mukuria, Donna Rowen, Sarah Acaster, Lisa J. McGarry, Yiyue Lou, Patrick R. Sosnay, Alexandra L. Quittner

    Diterbitkan 2024-02-01
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  9. 9
    Appropriateness of the EQ-5D-5L in capturing health-related quality of life in individuals with transfusion-dependent β-thalassemia: a mixed methods study

    Appropriateness of the EQ-5D-5L in capturing health-related quality of life in individuals with transfusion-dependent β-thalassemia: a mixed methods study oleh Adriana Boateng-Kuffour, Hanna Skrobanski, Jennifer Drahos, Puja Kohli, Katie Forster, Sarah Acaster, Zahra Pakbaz, Nanxin Li, Kate Williams

    Diterbitkan 2024-07-01
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  10. 10
    Allergy to Peanuts imPacting Emotions And Life (APPEAL): The impact of peanut allergy on children, teenagers, adults and caregivers in the UK and Ireland.

    Allergy to Peanuts imPacting Emotions And Life (APPEAL): The impact of peanut allergy on children, teenagers, adults and caregivers in the UK and Ireland. oleh Marina Tsoumani, Lynne Regent, Amena Warner, Katy Gallop, Ram Patel, Robert Ryan, Andrea Vereda, Sarah Acaster, Audrey DunnGalvin, Aideen Byrne

    Diterbitkan 2022-01-01
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  11. 11
    A qualitative study to explore the burden of disease in activated phosphoinositide 3-kinase delta syndrome (APDS)

    A qualitative study to explore the burden of disease in activated phosphoinositide 3-kinase delta syndrome (APDS) oleh Ian Hitchcock, Hanna Skrobanski, Elina Matter, Ewen Munro, John Whalen, Joanne Tutein Nolthenius, Alex Crocker-Buque, Amanda Harrington, Delphine Vandenberghe, Sarah Acaster, Kate Williams

    Diterbitkan 2024-05-01
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