Hasil Pencarian - Pascal Borry

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  1. 1
    Reward systems for cohort data sharing: An interview study with funding agencies.

    Reward systems for cohort data sharing: An interview study with funding agencies. oleh Thijs Devriendt, Mahsa Shabani, Pascal Borry

    Diterbitkan 2023-01-01
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  2. 2
    Credit and Recognition for Contributions to Data-Sharing Platforms Among Cohort Holders and Platform Developers in Europe: Interview Study

    Credit and Recognition for Contributions to Data-Sharing Platforms Among Cohort Holders and Platform Developers in Europe: Interview Study oleh Thijs Devriendt, Pascal Borry, Mahsa Shabani

    Diterbitkan 2022-01-01
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  3. 3
    Factors that influence data sharing through data sharing platforms: A qualitative study on the views and experiences of cohort holders and platform developers.

    Factors that influence data sharing through data sharing platforms: A qualitative study on the views and experiences of cohort holders and platform developers. oleh Thijs Devriendt, Pascal Borry, Mahsa Shabani

    Diterbitkan 2021-01-01
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  4. 4
    Attitudes and experiences of European clinical geneticists towards direct-to-consumer genetic testing: a qualitative interview study

    Attitudes and experiences of European clinical geneticists towards direct-to-consumer genetic testing: a qualitative interview study oleh Louiza Kalokairinou, Pascal Borry, Heidi C. Howard

    Diterbitkan 2019-10-01
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  5. 5
    From the principles of genomic data sharing to the practices of data access committees

    From the principles of genomic data sharing to the practices of data access committees oleh Mahsa Shabani, Bartha Maria Knoppers, Pascal Borry

    Diterbitkan 2015-05-01
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  6. 6
    Opt-in or out? Public perspectives on forensic DNA kinship investigations within the Dutch-speaking community

    Opt-in or out? Public perspectives on forensic DNA kinship investigations within the Dutch-speaking community oleh Sofie Claerhout, Hanna Noppe, Betty Cohn, Pascal Borry

    Diterbitkan 2024-05-01
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  7. 7
    Informed consent in children and young people: an introduction

    Informed consent in children and young people: an introduction oleh Pascal Borry, Louise Stultiëns, Herman Nys, Kris Dierickx

    Diterbitkan 2006-01-01
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  8. 8
    Polygenic risk scoring of human embryos: a qualitative study of media coverage

    Polygenic risk scoring of human embryos: a qualitative study of media coverage oleh Tiny Pagnaer, Maria Siermann, Pascal Borry, Olga Tšuiko

    Diterbitkan 2021-09-01
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  9. 9
    Informing a European guidance framework on electronic informed consent in clinical research: a qualitative study

    Informing a European guidance framework on electronic informed consent in clinical research: a qualitative study oleh Evelien De Sutter, Pascal Borry, Isabelle Huys, Liese Barbier

    Diterbitkan 2023-02-01
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  10. 10
    Personalized and long-term electronic informed consent in clinical research: stakeholder views

    Personalized and long-term electronic informed consent in clinical research: stakeholder views oleh Evelien De Sutter, Pascal Borry, David Geerts, Isabelle Huys

    Diterbitkan 2021-07-01
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  11. 11
    The author who wasn't there? Fairness and attribution in publications following access to population biobanks.

    The author who wasn't there? Fairness and attribution in publications following access to population biobanks. oleh Erika Kleiderman, Amy Pack, Pascal Borry, Ma'n Zawati

    Diterbitkan 2018-01-01
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  12. 12
    Controlled Access under Review: Improving the Governance of Genomic Data Access.

    Controlled Access under Review: Improving the Governance of Genomic Data Access. oleh Mahsa Shabani, Stephanie O M Dyke, Yann Joly, Pascal Borry

    Diterbitkan 2015-12-01
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  13. 13
    Digitizing the Informed Consent Process: A Review of the Regulatory Landscape in the European Union

    Digitizing the Informed Consent Process: A Review of the Regulatory Landscape in the European Union oleh Evelien De Sutter, Janos Meszaros, Pascal Borry, Isabelle Huys, Isabelle Huys

    Diterbitkan 2022-05-01
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  14. 14
    The social shaping of a diagnosis in Next Generation Sequencing

    The social shaping of a diagnosis in Next Generation Sequencing oleh Janneke M.L. Kuiper, Pascal Borry, Danya F. Vears, Ine Van Hoyweghen

    Diterbitkan 2021-10-01
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  15. 15
    Pre- and post-testing counseling considerations for the provision of expanded carrier screening: exploration of European geneticists’ views

    Pre- and post-testing counseling considerations for the provision of expanded carrier screening: exploration of European geneticists’ views oleh Sandra Janssens, Davit Chokoshvili, Danya F. Vears, Anne De Paepe, Pascal Borry

    Diterbitkan 2017-08-01
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  16. 16
    Newspaper coverage of biobanks

    Newspaper coverage of biobanks oleh Ubaka Ogbogu, Maeghan Toews, Adam Ollenberger, Pascal Borry, Helene Nobile, Manuela Bergmann, Timothy Caulfield

    Diterbitkan 2014-07-01
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  17. 17
    Personalized and longitudinal electronic informed consent in clinical trials: How to move the needle?

    Personalized and longitudinal electronic informed consent in clinical trials: How to move the needle? oleh Evelien De Sutter, Liese Barbier, Pascal Borry, David Geerts, John P.A. Ioannidis, Isabelle Huys

    Diterbitkan 2024-01-01
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  18. 18
    Testing and Practical Implementation of a User-Friendly Personalized and Long-Term Electronic Informed Consent Prototype in Clinical Research: Mixed Methods Study

    Testing and Practical Implementation of a User-Friendly Personalized and Long-Term Electronic Informed Consent Prototype in Clinical Research: Mixed Methods Study oleh Evelien De Sutter, David Geerts, Koen Yskout, Stef Verreydt, Pascal Borry, Liese Barbier, Isabelle Huys

    Diterbitkan 2023-12-01
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  19. 19
    Crowdsourcing smartphone data for biomedical research: Ethical and legal questions

    Crowdsourcing smartphone data for biomedical research: Ethical and legal questions oleh Michael Lang, Kyle McKibbin, Mahsa Shabani, Pascal Borry, Vincent Gautrais, Kamiel Verbeke, Ma’n H Zawati

    Diterbitkan 2023-09-01
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  20. 20
    Clinical Research in Neonates: Redesigning the Informed Consent Process in the Digital Era

    Clinical Research in Neonates: Redesigning the Informed Consent Process in the Digital Era oleh Evelien De Sutter, Birte Coopmans, Femke Vanendert, Marc Dooms, Karel Allegaert, Karel Allegaert, Karel Allegaert, Pascal Borry, Isabelle Huys

    Diterbitkan 2021-09-01
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