Consensus-based guidelines for the provision of palliative and end-of-life care for people living with epidermolysis bullosa oleh Mark P. Popenhagen, Paola Genovese, Mo Blishen, Dilini Rajapakse, Anja Diem, Alex King, Jennifer Chan, Eduard Pellicer Arasa, Simone Baird, Anna Carolina Ferreira da Rocha, Gideon Stitt, Kellie Badger, Vlasta Zmazek, Faiza Ambreen, Caroline Mackenzie, Harper Price, Toni Roberts, Zena Moore, Declan Patton, Paul Murphy, Kattya Mayre-Chilton