Hasil Pencarian - Durhane Wong-Rieger

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  1. 1
    Review of 11 national policies for rare diseases in the context of key patient needs

    Review of 11 national policies for rare diseases in the context of key patient needs oleh Safiyya Dharssi, Durhane Wong-Rieger, Matthew Harold, Sharon Terry

    Diterbitkan 2017-03-01
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  2. 2
    An international comparative analysis of public reimbursement of orphan drugs in Canadian provinces compared to European countries

    An international comparative analysis of public reimbursement of orphan drugs in Canadian provinces compared to European countries oleh Leanne Marie Ward, Alexandra Chambers, Emine Mechichi, Durhane Wong-Rieger, Craig Campbell

    Diterbitkan 2022-03-01
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  3. 3
    Essential list of medicinal products for rare diseases: recommendations from the IRDiRC Rare Disease Treatment Access Working Group

    Essential list of medicinal products for rare diseases: recommendations from the IRDiRC Rare Disease Treatment Access Working Group oleh William A. Gahl, Durhane Wong-Rieger, Virginie Hivert, Rachel Yang, Galliano Zanello, Stephen Groft

    Diterbitkan 2021-07-01
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  4. 4
    How can we deliver on the promise of precision medicine in oncology and beyond? A practical roadmap for action

    How can we deliver on the promise of precision medicine in oncology and beyond? A practical roadmap for action oleh Anne‐Marie Baird, C. Benedikt Westphalen, Sandra Blum, Begonya Nafria, Tanya Knott, Ify Sargeant, Helena Harnik, Nicholas Brooke, Nicole Wicki, Durhane Wong‐Rieger

    Diterbitkan 2023-06-01
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  5. 5
    Strengthening health systems for access to gene therapy in rare genetic disorders

    Strengthening health systems for access to gene therapy in rare genetic disorders oleh Sonal Bhatia, Yann Le Cam, Juan Carrion, Lauren Diamond, Paul Fennessy, Safiyya Gassman, Felix Gutzwiller, Stephen Kagan, Diana Pankevich, Jennifer Young Maloney, Nitin Mahadev, Martin Schulz, Durhane Wong-Rieger, Paolo Morgese

    Diterbitkan 2024-06-01
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  6. 6
    Model consent clauses for rare disease research

    Model consent clauses for rare disease research oleh Minh Thu Nguyen, Jack Goldblatt, Rosario Isasi, Marlene Jagut, Anneliene Hechtelt Jonker, Petra Kaufmann, Laetitia Ouillade, Fruszina Molnar-Gabor, Mahsa Shabani, Eric Sid, Anne Marie Tassé, Durhane Wong-Rieger, Bartha Maria Knoppers, on behalf of the IRDiRC-GA4GH Model Consent Clauses Task Force

    Diterbitkan 2019-08-01
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