The patient perspective of alpha-1 antitrypsin deficiency: disease burden and unmet needs mā Marion Wilkens, Michael Bartlett, Frank Willersinn, Karen O'Hara, Jeanette Boyd, Jessica Denning

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Management of children and adolescents with bronchiectasis: summary of the ERS clinical practice guideline mā Anne B. Chang, Keith Grimwood, Jeanette Boyd, Rebecca Fortescue, Zena Powell, Ahmad Kantar

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Patient participation in ERS guidelines and research projects: the EMBARC experience mā James D. Chalmers, Alan Timothy, Eva Polverino, Marta Almagro, Thomas Ruddy, Pippa Powell, Jeanette Boyd

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Recommendations for travelling with bronchiectasis: a joint ELF/EMBARC/ERN-Lung collaboration mā Michal Shteinberg, Barbara Crossley, Tal Lavie, Sima Nadler, Jeanette Boyd, Felix C. Ringshausen, Tim Aksamit, James D. Chalmers, Pieter Goeminne

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Principles of patient partnership: integrating patient perspectives into ERS Clinical Research Collaborations mā Courtney Coleman, Olivia Fulton, Jeanette Boyd, Clare Williams, Zena Powell, Christopher E. Brightling, Maarten van den Berge, Salman Siddiqui, Pippa Powell

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Understanding the priorities for women diagnosed with lymphangioleiomyomatosis: a patient perspective mā Iris Bassi, Gill Hollis, Vincent Cottin, Sergio Harari, Elma Zwanenburg, Marcel Veltkamp, Alvaro Casanova, Monica Fletcher, Sarah Masefield, Pippa Powell, Jeanette Boyd

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Digital technologies in bronchiectasis physiotherapy services: a survey of patients and physiotherapists in a UK centre mā Katherine O'Neill, Brenda O'Neill, Rebecca H. McLeese, James D. Chalmers, Jeanette Boyd, Anthony De Soyza, Paul McCallion, Judy M. Bradley

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Sarcoidosis: patient treatment priorities mā Robert P. Baughman, Rita Barriuso, Kelli Beyer, Jeanette Boyd, Johann Hochreiter, Chris Knoet, Filippo Martone, Bernd Quadder, Jack Richardson, Ginger Spitzer, Dominique Valeyre, Gianluca Ziosi

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Airway clearance treatments in bronchiectasis: feasibility of linking survey results to registry data and a survey of patients’ and physiotherapists’ practices mā Rebecca H. McLeese, Katherine O'Neill, Brenda O'Neill, James D. Chalmers, Jeanette Boyd, Anthony De Soyza, Ryan McChrystal, Megan L. Crichton, Judy M. Bradley

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What is important for people with nontuberculous mycobacterial disease? An EMBARC-ELF patient survey mā Michal Shteinberg, Jeanette Boyd, Stefano Aliberti, Eva Polverino, Bridget Harris, Tove Berg, Annette Posthumus, Thomas Ruddy, Pieter Goeminne, Ernie Lloyd, Timothy Alan, Josje Altenburg, Barbara Crossley, Francesco Blasi, James Chalmers

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The European Multicentre Bronchiectasis Audit and Research Collaboration (EMBARC): experiences from a successful ERS Clinical Research Collaboration mā James D. Chalmers, Megan Crichton, Pieter C. Goeminne, Michael R. Loebinger, Charles Haworth, Marta Almagro, Montse Vendrell, Anthony De Soyza, Raja  Dhar, Lucy Morgan, Francesco Blasi, Stefano Aliberti, Jeanette Boyd, Eva Polverino

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Clinical and research priorities for children and young people with bronchiectasis: an international roadmap mā Anne B. Chang, Jeanette Boyd, Leanne Bell, Vikas Goyal, I. Brent Masters, Zena Powell, Christine Wilson, Angela Zacharasiewicz, Efthymia Alexopoulou, Andrew Bush, James D. Chalmers, Rebecca Fortescue, Adam T. Hill, Bulent Karadag, Fabio Midulla, Gabrielle B. McCallum, Deborah Snijders, Woo-Jung Song, Thomy Tonia, Keith Grimwood, Ahmad Kantar

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Quality standards for managing children and adolescents with bronchiectasis: an international consensus mā Anne B. Chang, Jeanette Boyd, Andrew Bush, Adam T. Hill, Zena Powell, Angela Zacharasiewicz, Efthymia Alexopoulou, James D. Chalmers, Andrew J. Collaro, Carolina Constant, Konstantinos Douros, Rebecca Fortescue, Matthias Griese, Jonathan Grigg, Andreas Hector, Bulent Karadag, Oleksandr Mazulov, Fabio Midulla, Alexander Moeller, Marijke Proesmans, Christine Wilson, Stephanie T. Yerkovich, Ahmad Kantar, Keith Grimwood

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ERS statement on standardisation of cardiopulmonary exercise testing in chronic lung diseases mā Thomas Radtke, Sarah Crook, Georgios Kaltsakas, Zafeiris Louvaris, Danilo Berton, Don S. Urquhart, Asterios Kampouras, Roberto A. Rabinovich, Samuel Verges, Dimitris Kontopidis, Jeanette Boyd, Thomy Tonia, Daniel Langer, Jana De Brandt, Yvonne M.J. Goërtz, Chris Burtin, Martijn A. Spruit, Dionne C.W. Braeken, Sauwaluk Dacha, Frits M.E. Franssen, Pierantonio Laveneziana, Ernst Eber, Thierry Troosters, J. Alberto Neder, Milo A. Puhan, Richard Casaburi, Ioannis Vogiatzis, Helge Hebestreit

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Research priorities in α1-antitrypsin deficiency: results of a patients' and healthcare providers' international survey from the EARCO Clinical Research Collaboration mā Miriam Barrecheguren, Karen O'Hara, Marion Wilkens, Jeanette Boyd, Ewa Kolda, Beatriz Lara, Joanna Chorostowska-Wynimko, Ilaria Ferrarotti, Jan Chlumský, Christian Clarenbach, Timm Greulich, Marc Miravitlles, Maria Sucena, Members of EARCO CRC Timm Greulich (Germany, co-chair) Marc Miravitlles (Spain co-chair). Steering committee:, Joanna Chorostowska-Wymiko (Poland), Ilaria Ferrarotti (Italy), Noel G. McElvaney (Ireland), Karen O'Hara (UKpatients' representative), Jan Stolk (Netherlands), Robert A. Stockley, Alice Turner (UK), Marion Wilkens (Germany patients' representative), EARCO members:, Angelo Corsico, Luciano Corda (Italy), Maria Sucena (Portugal), Miriam Barrecheguren (Spain ERS early career representative), Cristina Esquinas (Spain), David Parr, Beatriz Lara, Ravi Mahadeva (UK), Jan Chlumsky (Czech Republic), Sabina Janciauskiene, Robert Bals (Germany), Jens Ulrik Jensen (Denmark), Kostas Kostikas (Greece), Malcolm Kohler, Christian Clarenbach (Switzerland), Alan Altraja (Estonia), Wim Jenssens, Silvia Pérez-Bogerd (Belgium), Caroline Gouder (Malta), Ana Hecimovic (Croatia), Aleksandra Dudvarski (Serbia), Alvils Krams (Latvia), Ruxandra Ulmeanu, Ana Zaharie (Rumania), Jean-François Mornex (France), Arzu Yorgancioglu (Tukey), Karin Schmid-Scherzer (Austria), Hanan Tanash, Eeva Piitulainen (Sweden), Oleksandr Mazulov (Ukraine), Yavor Ivanov (Bulgaria)

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